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National Data Opt-out (was Care Data)

your care data

National Data Opt-out

Due to the introduction of the General Data Protection Regulation (GDPR) in May 2018 there have been national changes on how patients record their preference on how they would like their data shared. Type 2 sharing preferences are no longer collected by Rothwell & Desborough Healthcare Group.

The national data Type 2 opt-out is set by the individual and CANNOT be set by the GP or other member of the practice staff. Opt out information is not stored or implemented through the use of codes in the GP system, they are held by NHS Digital on a central repository on the Spine.

What has Changed?

Type 1 opt-out: medical records held at your GP practice

  • Some patients will have a type 1 opt-out registered with us, which prevents their confidential patient information leaving the practice for research and planning purposes.
  • These existing type 1 opt-outs will continue to be respected until 2020, when the Department of Health and Social Care will consult with the National Data Guardian on their removal.
  • We will continue to record patient choices and apply type 1 opt-outs.

Type 2 opt-out: information held by NHS Digital

  • Previously you could tell your GP surgery if you did not want NHS Digital (formerly known as HSCIC – Health and Social Care Information Centre) to share confidential patient information that they collect from the across the health and care service for purposes other than your individual care. This was called a type 2 opt-out.
  • From 25 May 2018 the type 2 opt-out has been replaced by the National Data Opt-out.
  • Type 2 opt-outs that were previously recorded have been automatically converted to National Data Opt-outs.
  • This type of opt-out is no longer recorded at the GP surgery, instead you can change your National Data Opt-out by using this link  or by calling the NHS Digital contact centre on 0300 303 5678 which is open between 9am to 5pm Monday to Friday (excluding bank holidays)
  • You do not need to do anything if you are happy about how your confidential patient information is used. You can change your choice at any time.
  • Young adults from the age of 13 can set and change their own national data opt-out.

The summary care record is a different kind of information sharing. It began in 2010. This is an electronic summary of your medical record for practical clinical use. This is so that if you are being treated away from home, for example, the doctor treating you would know essential details. This would include your allergies, regular medication and past history. Since this began, you have had the option of opting out of this scheme too. There is a form for this, available from your GP surgery. It is a different one from the new National data opt-out form. (See our Summary Care Records Web page to download the form.) One form cannot be used for both. Different codes are put on your records to opt out of each scheme. You can change your mind at any time.

You have a choice. If you are happy for your information to be used in this way you do not have to do anything. If you have any concerns or wish to prevent this from happening, please speak to practice staff or download the opt out form below, complete it and return it to the practice.  You do not need to make an appointment to see your doctor to do this.

We need to make sure that you know this is happening and the choices you have.

doc National Data Opt-out Type 1 Form

doc Patient Guide - Your Data Matters

Link to NHS Digital website - information on benefits of sharing your data, how it is used and how you can opt-out


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